When I got home tonight, there was a big manila envelope on my desk that came in the mail today.
The cover letter from U.S. Department of Health and Human Services, reads:
Dear Kidney Patient,
The Centers for Medicare and Medicaid Services, the Federal Medicare Agency, has just learned from the renal registry that you have End Stage Renal Disease (ESRD). As a health care payer, we want to make sure that you get good care and the information you need to make informed choices. We are please to give you this packet of information, that includes…… (and the package includes booklets on where to locate dialysis facilities, 5 reasons to consider a A-V Fistula for dialysis, preparing for emergencies for people on dialysis and all sorts of other govt. brochures.)
To my transplant team, should I be concerned about this news? Since Jen and I never ACTUALLY saw Dr. Piper move her kidney to me, and poking at our abdomens just feels like squishy stuff, can’t really feel that there is something new/missing, does DHHS know something that we don’t, or that you’re not telling us?
To the rest of my friends, while not making a political point about the quality of federal health care, either they are anticipating the distant future, or they are 4 years late in getting the news… either way, scary.
In other transplant news, there really isn't much. Jen's fully recovered and in the final countdown for the wedding week after next. I'm still fine-tuning my meds, I got a bit low on white-cell count, so they cutting back on my anti-rejection drugs and adding some to boost white cell count.
gc
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